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“Although rare disease patients constitute a small population statistically, they are entitled—like all members of society—to the highest standards of medical care, social support, and hope for the future.”
Dr. Ali Davoudian
The Late Founder of the Rare Diseases Foundation of Iran
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FAQ
In this section, we have sought to address some of the most common questions regarding rare diseases, their diagnosis, treatment, and available support services, in order to facilitate access to reliable information for patients and their families.
A rare disease is defined as a condition that affects a relatively small number of individuals within a population. Most rare diseases have a genetic origin and require specialized diagnosis and care.
Not all rare diseases have a definitive cure; however, many can be effectively managed and controlled through early diagnosis, appropriate medical care, specialized medications, and rehabilitative services.
Patients and their families can benefit from services such as counseling, referrals to specialized centers, educational support, and other assistance by registering their information in the foundation’s systems or by visit to relevant centers.
By registering with SABNA, be the voice of rare disease patients.
Join the SABNA system today and accompany us in our mission to improve the quality of life for rare disease patients.