The 4TH volume of the Atlas
The 4TH volume of the Atlas of rare diseases of Iran…
Category raredisease-news
Children suffering from EB
Enter by a smile. This is the first thing you…
Helping doesn’t depend on the number of help wanted
Henoch-Schonlein Purpura (HSP) is kind of rare disease which is…
The story of a boy who just opens his eyes by his mother’s voice
He lived normally and he didn’t have any problems till…
Lifetime Achievement Award Honoree
Dr. Robert M. Campbell, Jr. is Director of the Center…
You Know You’re An EB Mom
You Know You’re An EB Mom When… & What I…
Rare Disease Day 2018 Ambassador
Sean Hepburn Ferrer, the eldest son of the late actress…
Oliver’s Story
Our son Oliver was struck down with Acute Necrotising Encephalopathy of Childhood (ANEC) this…
The Artist Who Lived Life with Every Stroke
“I knew something was not right with my child. I…